Pigeon Feed
View unanswered posts | View active topics It is currently Wed Jan 17, 2018 12:18 am



Reply to topic  [ 8 posts ] 
 I have some good news. 
Author Message
User avatar

Joined: Sat Apr 09, 2011 4:40 pm
Posts: 2017
Post I have some good news.
Most of you know I have a brain tumour and have chronic balance / vertigo / brain fog / seizure / exhaustion problems. However, they couldn't figure out where the balance problems and vertigo were coming from as the tumour is not near the balance centers in the brain. I've been through a zillion specialists in the last year (FUCK THEM ALL - I can't stand doctors) who would rub their chins, look down on me (as my head was going round and round and round - the feeling you get coming off a merry go round) and say, 'well, some of your symptoms fit this so take this drug". Which I wouldn't cause that's bullshit. Fuck, I would be loaded up on valium and every other barbituate you could think of if I listened to them.

Anyway, my angst about doctors is coming out here. Back to the good news:

I have gluten ataxia. Which is an intolerance to gluten but instead of the antibodies created in response to seeing gluten as a foreign body and attacking my intestine, they are attacking my cerebellum/pukinje cells. The pukinje cells take all the information from your body moving through space (nerves, vestibular/occular) and compute it to help you move smoothly.

I did a gluten challenge for 7 weeks, just finishing up at the end of December and I thought I was going to die. I did die in a way. All I could do was lay on the couch. Seriously. I only washed my hair once that whole time. Didn't leave the house. Brain fog, falling over, drunken sailor walking, vertigo. Oooh. I'll never go back there again.

It's been almost two months since Ive stopped ingesting gluten and I'm starting to feel like me again. Seriously. I thought life was over. But now I can start seeing a path opening up again. After three years.

I feel great. The antibodies have a half life of three months so by the end of three months, I'll have half of them and then in another three, half of them and so on and so on. By the end of the year, if I don't accidently ingest gluten, they'll be all gone.

The damage to the cerebellum will not reverse itself but it will not worsen now. Relief from the vertigo is like the BEST THING EVER...and also not having hyper sound acuity/sound induced vertigo.

I'm very happy. Oh and I would just love to give you all a hug and a big kiss of joy and say thanks for your patience with me when my brain wouldn't think.

PS - I can now go under flourescent lights without having a seizure. :)

_________________
“Integrity has no need of rules.”

-Albert Camus


Mon Feb 20, 2012 11:26 pm
Profile
User avatar

Joined: Thu Mar 31, 2011 6:31 pm
Posts: 8628
Location: In Your Bedroom. Hi! :D
Post Re: I have some good news.
Pana wrote:


The damage to the cerebellum will not reverse itself but it will not worsen now. Relief from the vertigo is like the BEST THING EVER...and also not having hyper sound acuity/sound induced vertigo.

I'm very happy. Oh and I would just love to give you all a hug and a big kiss of joy and say thanks for your patience with me when my brain wouldn't think.

PS - I can now go under flourescent lights without having a seizure. :)


Jesus. That is great news. Congratulations, Pana!!!

_________________
FFS!


Here I am Expecting Just A Little Bit Too Much From The Wounded - A Perfect Circle

Time and space are enfolded, and therefore there's no causality - Karl Pribram


Mon Feb 20, 2012 11:32 pm
Profile
User avatar

Joined: Thu Mar 31, 2011 4:00 pm
Posts: 10071
Post Re: I have some good news.
Really glad for you that something was found as the issue.

Continued good health to ya.


Tue Feb 21, 2012 12:14 am
Profile
User avatar

Joined: Tue Apr 05, 2011 6:37 pm
Posts: 2349
Location: Skellig Michael
Post Re: I have some good news.
Pana, you could be a Godsend. I detest florescent lights and want to have them banned. You could be the poster girl for the incandescent bulb.

_________________
Credo quia absurdum.


Tue Feb 21, 2012 4:32 am
Profile
User avatar

Joined: Mon Apr 04, 2011 9:20 pm
Posts: 6429
Location: Boycotteverything
Post Re: I have some good news.
Oil lamps, young fella. Oil lamps.

_________________
"If you don't think to good, don't think too much." Yogi


Tue Feb 21, 2012 2:20 pm
Profile YIM
User avatar

Joined: Sat Apr 09, 2011 4:40 pm
Posts: 2017
Post Re: I have some good news.
Dr. Ex...

I despise flourescent lights.

I will be your poster girl and your guerrilla.

_________________
“Integrity has no need of rules.”

-Albert Camus


Tue Feb 21, 2012 3:35 pm
Profile
User avatar

Joined: Tue Apr 05, 2011 6:37 pm
Posts: 2349
Location: Skellig Michael
Post Re: I have some good news.
[Kewl, we sneak into the florescent bulb factory and fill the tubes with fulminated mercury.]

_________________
Credo quia absurdum.


Tue Feb 21, 2012 11:03 pm
Profile
User avatar

Joined: Mon Apr 04, 2011 7:53 am
Posts: 3547
Post Re: I have some good news.
This is great news, Pana, I am very happy for you!


Sat Feb 25, 2012 5:39 pm
Profile
Display posts from previous:  Sort by  
Reply to topic   [ 8 posts ] 

Who is online

Users browsing this forum: No registered users and 1 guest


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum

Search for:
Jump to:  
cron
Powered by phpBB © 2000, 2002, 2005, 2007 phpBB Group.